CHD Awareness Week

CHD* Awareness Week February 7 - 14
*Congenital Heart Disease

Official press release from the White House about American Heart Month

Before I had Alyson, I had never heard of CHD Awareness Week before. Also, before I had Alyson, I had never heard of many of the heart defects that there are. This is the reason for this blog post, to spread awareness and be educated in what CHD really is and what it can do. The statistics are staggering!

Also, I came across a blog a few weeks ago when I decided to do a Google search for a blog for another child that had HRHS. I did happen to come across one and she did a post about another blog that will be doing many great things for CHD Awareness Week. She will have a Heart Mom tell their story each day from February 7 - 14. Every heart story is different but common in the sense that each little heart baby is loved dearly. If you have time, please visit this site starting next Monday to read Heart Mom interviews. Next week, I will also write Alyson's story as it has never been fully written out, just bits and pieces put into different posts.

www.whenlifehandsyouabrokenheart.blogspot.com

• Congenital heart defects are America’s #1 birth defect. Nearly one of every 100 babies is born with a CHD.
  

• Congenital heart defects are the #1 cause of birth defect related deaths.
  

• Congenital heart defects are the leading cause of all infant deaths in the United States.

• Each year approximately 40,000 babies are born in the United States with a congenital heart defect. Thousands of them will not reach their first birthday and thousands more die before they reach adulthood.

• Each year over 1,000,000 babies are born worldwide with a congenital heart defect. 100,000 of them will not live to see their first birthday and thousands more die before they reach adulthood

• Almost half all children and adults with complex congenital heart disease have neurological and developmental disabilities.

• There are an estimated 2,000,000 CHD survivors in the United States.
  

• For the first time, more than 50% of the CHD survivors are adults.
  

• 10% of all CHD cases evaluated in an Adult CHD clinic are first diagnosed in adulthood.

• 91,000 life years are lost each year in this country due to congenital heart defects.

• The cost for inpatient surgery to repair congenital heart defects exceeds $2.2 billion a year.

• More than 50% of all children born with congenital heart defect will require at least one invasive surgery in their lifetime.

• There are more than 40 different types of congenital heart defects. Little is known about the cause of most of them. There is no known prevention or cure for any of them.

• In the United States, twice as many children die from congenital heart defects each year that from all forms of childhood cancer combined, yet funding for pediatric cancer research is five times higher than funding for CHD.

• Congenital heart defects are common and deadly, yet CHD research is grossly under-funded relative to the prevalence of the disease.

• Only one penny of every dollar donated to the American Heart Association goes towards congenital heart defect research.

• Of every dollar the government spends on medical funding, only a fraction of a penny is directed toward congenital heart defect research.

• The NHLBI has stated that Congenital Heart Defects are a serious and under appreciated global health problem.

• In the last decade death rates for congenital heart defects have declined by almost 30% due to advances made through research.
  

(Info from www.whenlifehandsyouabrokenheart.blogspot.com)